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Grants
Supporting Breakthroughs in Rare Genetic Research
At Tough Genes, our mission is to accelerate research that brings hope, answers, and treatments to families affected by rare genetic conditions. Through our grant-making program, we partner with scientists, clinicians, pharmaceutical companies and research institutions who are committed to making meaningful advances in understanding and treating these disorders. Our ultimate goal? A safe and effective treatment for IRF2BPL-Related Disorder (NEDAMSS).
What We Fund
We support projects that help advance:
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Preclinical or translational research
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Novel therapeutic development
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Pilot studies leading to larger-scale trials
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Technology or method development relevant to genetic disorders
Our goal is to fund work that directly benefits families and pushes science forward.
Learn More or Apply
Our 2026 Research Grant funding opportunity is currently open for proposals.
Information regarding the funding opportunity and proposal submittal instructions below.
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For additional information, please contact: info@toughgenes.org
Our Grant Recipients
Tough Genes is proud to support researchers who are pushing the boundaries of science and accelerating progress for families affected by rare genetic disorders. Below are the teams and projects we’ve previously funded through our grant programs.
April 2025 Awardee
Krishna Patel
Under the supervision of Dr. Hab. Pawel Lisowski
Max Delbrück Center - Berlin Institute for Medical Systems Biology (MDC-BIMSB)​​
Project: Perform medical research in the area of IRF2BPL and continue an established research project on the IRF2BPL gene.